If you’re here, there’s a good chance hidradenitis suppurativa has touched your life in some way.

Maybe you’ve been diagnosed.
Maybe you think you have it but are not sure.
Maybe you love someone who is dealing with it.
Or maybe you are just tired, overwhelmed, and looking for someone who understands.

This page was created for people like us.

Life with HS is a place for honesty, support, and real-life experiences. Not perfection. Not pretending everything is easy. Just the truth about what it means to live with HS and keep going.

HS can affect so much more than skin. It can affect confidence, comfort, relationships, work, daily routines, and mental health. It can make simple things feel hard. It can make you feel isolated, embarrassed, frustrated, or exhausted in ways other people do not always understand.

That is part of why I wanted to create this space.

I know how heavy it can feel to live with something that impacts your body and your life in such a personal way. I also know how powerful it is to feel understood. Sometimes just hearing, “me too,” can make a huge difference.

On this site, I will be sharing my journey, my thoughts, what has helped me, what has not, and what life really looks like while living with HS. Some posts will be practical. Some will be personal. Some may just be honest reflections from the hard days and the hopeful ones.

My hope is that this becomes a place where people with HS can feel less alone.

This is not about having all the answers. It is about showing up honestly, learning along the way, and creating room for encouragement, support, and community.

If you are struggling right now, I want you to know this:

You are not alone.
You are not broken.
And your life is still yours to live.

Thank you for being here at the beginning of this journey.

Welcome to Life with HS.

A quick note

I am sharing my personal experience and perspective, along with those of others who have HS. Nothing on this site should replace medical advice, diagnosis, or treatment from a qualified healthcare professional.