About
About Life with HS
Life with HS was created for people who are living with Hidradenitis Suppurativa (HS)—and for those trying to understand it.
If you’re here, there’s a good chance HS has touched your life in some way.
Maybe you’ve been diagnosed.
Maybe you’re still searching for answers.
Maybe you love someone who is dealing with it.
Or maybe you’re just trying to make sense of something that feels overwhelming.
This space is for you.
Why This Site Exists
HS is often misunderstood.
It’s not just a skin condition. It affects how you move, how you plan your day, how you feel in your own body, and how you show up in the world. It can impact confidence, relationships, work, and mental health in ways that aren’t always visible to others.
A lot of people living with HS feel alone in that experience.
This site was created to change that.
Life with HS is a place for honest conversations, real experiences, and support without judgment. No pretending everything is easy. No pressure to have it all figured out.
Just real life.
My Story
I created this site because I’ve lived through HS in a way that changed my life.
My experience with HS led to surgery and the loss of skin. It’s something that shaped how I move, how I think, and how I live day to day.
I don’t share this for sympathy. I share it because I know how isolating HS can feel—and how powerful it is to hear from someone who understands.
I may not show everything visually, but I will always be honest about the reality of living with HS.
What You’ll Find Here
On this site, you’ll find:
- Real-life experiences living with HS
- Honest reflections from both hard days and hopeful ones
- Practical tips and things that have helped (and what hasn’t)
- Support for the emotional and mental side of HS
- A space where you don’t have to explain yourself
Some posts will be personal.
Some will be practical.
Some will simply be honest.
You’re Not Alone
If you’re struggling right now, I want you to know this:
You are not alone.
You are not broken.
And your life is still yours to live.
There is strength in continuing forward—even on the hard days.
A Quick Note
This site is based on personal experience and shared stories from others living with HS. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider regarding your condition.